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Hi Elizabeth: I check by every few weeks/months. My nine year old son has Aspergers and I and my new husband are working to understand what to do, etc. It's a hard road. Christopher seems to want control of himself to an absurd degree--the right no…
January 5
I'm checking in.
January 5
Listening to the same song over and over again is very common with Aspies. It's one of few things I can do to calm my mind down sometimes. I wouldn't discourage this behavior. I listen to music every night when I get home from work. Sometimes for s…
December 14, 2009
Julie added a blog post
Much has happened since I was last here. Right now the dilemma with Christopher is that he tests positive for the Gifted and Talented Program at school, having an IQ high enough to enter it without further debate, but he has to take an achievement t…
December 14, 2009
Christopher tests positive for gifted and talented (IQ wise) but refuses to take the achievement test. Also I am getting remarried.
December 14, 2009
November 16, 2009
Thanks for being there Georgia. The echo cardiogram came back normal, though Christopher's heart rate does escalate at times. I think anxiety combined with his being somewhat out of shape is the problem. He's suddenly started some very aspie behavi…
April 9, 2009
oh Julie, you've had such a rough time. I'm so sorry. I've been away from the page for such a long time....I know I haven't chatted with you for awhile, but I will always be willing to listen to you vent if needed!
April 8, 2009

Profile Information

Age, (All Members Must Be Over The Age of 13)
48
Zip Code / Postal Code
71201
What relationship are you to someone with Asperger's Syndrome
Parent

Julie's Blog

Julie

Today, December 13, 2009

Much has happened since I was last here. Right now the dilemma with Christopher is that he tests positive for the Gifted and Talented Program at school, having an IQ high enough to enter it without further debate, but he has to take an achievement test and refuses to do so. Although he originally said he wanted to do the G. T. program, he now says it would require extra work and he doesn't want to do it.

I want him to do it; his dad wants him to do it; his stepmother (now that John and she are… Continue

Posted on December 14, 2009 at 10:41am —

Julie

;Today March 31, 2009

I've been overwhelmed.

About a year ago Christopher was diagnosed with Asperger's; we moved to a new home and over the summer made friends with my ex and the girl over whom he left me. Fall happened; spring is almost over, and Christopher has had multiple health problems: his platelet count, for reasons not yet definite, has run low every time he's been ill. This means he is in greater danger of bleeding if he gets a virus; while so far they have not been critically low, one must monitor, becau… Continue

Posted on March 31, 2009 at 9:30am — 3 Comments

Julie

Fall, 2008

I've had more trouble lately with my own moods than with Christopher. But some of the sadness the past few days has been focused on him. He has joined cub scouts; I'm ambivalent in a way. He needs the social contact, but at the last meeting he seemed more focused on the book he was supposed to bring than on the meeting. The book was about lizards; he was quietly reading it out loud while others were talking. Everything he said was about lizards.

We met another little boy who has an autism spect… Continue

Posted on October 27, 2008 at 10:00am — 3 Comments

Julie

July 15, I think --taking inventory of summer progress

My computer isn't showing me the date. Christopher will be home this evening. I've talked to him by phone once or twice a day since he's been gone. The conversations themselves have been less important to me that knowledge that he's safe and happy.

Half the time, I can't hear what Christopher is saying on the phone or he can't hear me. Apparently we need to teach him how to hold his dad's cell phone. There are many basic skills which Christopher seems to lack, and I'm not sure who to ask to hel… Continue

Posted on July 14, 2008 at 11:30am — 1 Comment

Julie

July and it's already the 9th

Christopher is leaving with his dad and dad's girlfriend to go to Ohio for six days. That's a two day drive if one stops overnight at a motel.

I am devastated at the idea of his being away from me for six days. Christopher keeps talking to me about everything being nature; it's nature, so I should accept it that he is leaving. Everything is nature. He is a part of nature. I am a part of nature. Everything but this house is a part of nature.

I couldn't follow him any better than he could me. So… Continue

Posted on July 9, 2008 at 10:03am —

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At 8:58pm on November 2, 2008, Janet proud mom of Zach said…
Oh Julie, sorry to hear that Christopher has been sick. Hope he gets
well soon. We ( my grown son's and Myself) have a platelet problem.
The Dr.'s thought at first it was Von Willabraunz disease which is a
free bleeder but it turns out that we produce the amount of platelets
we are suppose to but there is a malfunction with them so we are
suppose to eat a lot of things that are high in vit.k such as greens
spinach,collard greens, kale,etc, peanut butter, peanuts, asperagus
and all that kind of stuff. We are not free bleeders but we still have to
be very careful with deep cuts and surgery's. When my 33yr.old had
his tonsils out they gave him 150cc of platelets before surgery as
a precautionary measure. Take one day at a time and I'm sure he
will be fine. Let me hear from you and keep me informed. Take care
of yourself and we will talk more later. Hugs to you and Christopher,
Janet
At 9:31pm on November 1, 2008, Janet proud mom of Zach said…
Hey Julie, Where have you been? haven't seen you on here in a while.
I'm a little worried about you. Are you ok? How is Chistopher doing?
I get a little concerned when I don't see the regular's on here in a while.
I hope things are better for you and Christopher and that things have
settled down so you can relax and get some enjoyment out of life.
You just seemed so down the last time you blogged and I have had
and will still keep you in our prayers. Take care and let me hear from
you. Bless you child, Janet
At 5:00pm on May 15, 2008, Kaelin said…
Hey Julie, thanks for the sympathy. usually ayrek doesn't like going to the bathroom before we go somewhere either. Its good to have others who know what I feel like. :)
At 12:25pm on May 4, 2008, Kyla said…
Hey,
I know, my main question is deffinately a hard one. I dunno what to do. I mean, I guess she's technically not my stepsister since her mom and my dad aren't married but they've been living together for over 5 years so i just call them that.
But her mom is such.. a piece of work. And i dunno how she would react if she did find out that her daughter was on here.

But yes, I definately feel that growing up with an aspie is really hard on the siblings. the whole family even. I dunno. I guess that as a sister sometimes I feel like I can't do anything right, and I will often get blamed for his meltdown if I'm in the same room, even if I didn't even do anything wrong. Yeah.. it can be very frustrating.
At 9:28am on May 2, 2008, Janet proud mom of Zach said…
Hey Julie, this is janet and yea, we were hearing a little bit of these
things before the strattra but after the strattra it became worse. We
heard that all the time. There was a segment on either 20/20 or 48hrs.
on the fact that during the time people are taking this drug they are
having suicidal thoughts. We have Zach on nothing except these
drops and they have helped tremendously. It takes a little time but
it has been well worth the patience. It is a scary thing to hear your
young child saying these things let alone anyone else. I worked in
a pharmacy for about 30yrs. and I simply don't llike the side effects
of these drugs. The young man that shot up virginia tech. had
Aspergers and had been on these kind of drugs for years and had
ran out of them and or quit taking them I can't remember, but this is
what happens. After being on these drugs for years when they get
old enough to make their own decisions and quit taking them these
are the things that happens because they do not do a stepdown
program. This is the very reason why I do not want Zach on these
drugs. We just decided that we will deal with whatever we have to
without these kinds of drugs. We have tried several natural products
and we have had better results with the drops than with any other
natural product that we have tried. Hope this is helpful, will talk later,
Janet
At 5:51pm on May 1, 2008, Celeste said…
hey julie
christopher's story is super cool! those kids are so amazing what goes on in their brains just blows my mind. anyway havent seen you on for awhile but i havent been here either so just wanted to say hello and hope everything is settling down now that you have been moved into
your new house for a while. take care of yourself and hope to hear from you soon ***hugs***
At 1:32am on April 19, 2008, Celeste said…
hey julie- ***hugs*** thanks for replying to the discussion i started. i read your question too about how they feel ... its pretty crazy the world they live in. like they have enough autism to make them wish they could live in a bubble - at least so it seems. i am glad you get "breaks" from your ex. the little time you get to yourself i hope you spend on yourself. sounds like you need to. sleep well... gnite
At 4:25pm on April 16, 2008, Celeste said…
hey julie - i am just checking in to make sure you are hanging in there okay. i just was reading some of your stuff and just wanted to say hi and send ****hugs**** i hope you are okay. i know that feeling of hopeless, shitty, down-in-the-dumps can really get the best of you sometimes and you and christopher are going through a big adjustment time right now. anyway i know you arent online now but just wanted you to know i am thinking of you! take care - ttyl
At 4:53pm on April 4, 2008, tania said…
hey julie my son is 4 and he might have the same thing can you give me symptons of how your son would act.
 
 

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