- Deanna R.
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Teens With Asperger's Sy…
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Deanna R.'s Discussions
Introduction
Replied Jan. 30, 2009
Meds: Abilify & Navane
Replied Jan. 30, 2009
Deanna R.'s Page
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Did you really paint the picture? WHEW! I have never seen anything this beautiful in my life! WOW!
I used to see these when we lived in Malaysia!
What a beautiful photo!
Unfortunately teachers , at least most of them are only educated in teaching education. So not unlike doctors, one must actually specialize within the field or research the information on their own time. I have the same difficulties for many of my c…
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Deanna R.'s Blog
WCCO news Report on Aspergers and a study looking for Adult Volunteers
http://wcco.com/health/aspergers.syndrome.disorder.2.843504.html
I hope this link works, it is a local Minnesota station that is looking into Aspergers seriously and focusing on Fraser's Adult Study. I hope you all can look this up; it was wonderful to see our children looked at as successful wonderful people.
Deanna
I hope this link works, it is a local Minnesota station that is looking into Aspergers seriously and focusing on Fraser's Adult Study. I hope you all can look this up; it was wonderful to see our children looked at as successful wonderful people.
Deanna
Posted on October 20, 2008 at 3:00pm —
Wow, can you believe this?????
Hello, we had one of THOSE nights on Monday. Our 15 year old son was at wrestling practice, when practiced ended my son and another boy continued to work on some moves. They didn’t shut down when the coaches left. Soon I would receive one of those most hated phone call’s a Mom can ever get.
Mike was hurt and hurt bad. We tore off down the road with the only knowledge being that Mike had injured his tongue. Yes, his tongue. Okay how bad could it really be? As I drove over the speed limit one of o… Continue
Mike was hurt and hurt bad. We tore off down the road with the only knowledge being that Mike had injured his tongue. Yes, his tongue. Okay how bad could it really be? As I drove over the speed limit one of o… Continue
Posted on October 17, 2008 at 1:37am — 6 Comments
Happy Father's Day
To all the fathers out here that have Aspergers or support a wonderful child or spouse with Aspergers! Hat's off to all of you! Have a great Father's Day!
Mike and Deanna R.
Mike and Deanna R.
Posted on June 15, 2008 at 1:14pm —
HAPPY MOTHER'S DAY!!!!!
Wishing all the Mom's reading this, an early wonderful.. wonderful..wonderful.. Mother's Day!!!!!!
Hug yourselves today, you have all deserved it!!!!!!!
Hug yourselves today, you have all deserved it!!!!!!!
Posted on May 10, 2008 at 6:30pm — 2 Comments
Dental Issues?
Does any one else experience dental issues? I have talked to a few parents of Aspie children they say they have more dental issues with their Aspie children such as cavities. cracked teeth etc. and more issues with dentist's telling the parents and child that they must be on high sugar diets, like soda, sugared cerels and candies. Sadly our son uses a low sugar diet. ( just as the other parents had expressed to me too) Our son is OCD about brushing his teeth, and regularly uses dental floss. Our… Continue
Posted on April 20, 2008 at 9:28pm — 5 Comments
Comment Wall (47 comments)
- At 8:26pm on October 31, 2009, Meghan Stewart-Snoad gave Deanna R. a gift…
- At 8:31pm on July 10, 2009,
Benjamin Tshudy said… - Oh, and I did read the book "Look Me in the Eye" and it was good. I wish I could get my mom to read the book too though.
- At 8:24pm on July 10, 2009,
Benjamin Tshudy said…
- Thanks for your reply to my discussion about Understanding and Acceptance. I have been doing ok but my parents still do many things that have always been frustrating and stressful for me. I am not necessarily sure if then know how much discomfort the things they do cause me but I am too uncomfortable to approach them and talk to them about these things.
- At 9:20am on March 16, 2009,
Eleanor Lewis said… - Hi Deanna! I'm finally getting time to sit down & make some replys. Thank you so much for your input. This site is helping me so much just by hearing from people like you. It is almost unbelievable to me to see all the similarities all these "Aspie" children have. I don't have that much to contribute, but it is comforting just to read all the comments.
We have been having a lot of "fun" dealing with Sarah's glasses. She only started wearing them in November, but since then we have had to replace the nose pieces 5 times, then she totally bent the frames, so we had to replace them. (This time with plastic frames that have no nose pieces.) She just fidgets with them, but there is nothing for her to chew off. Now we had to tape the holder for her glasses on the side arms with electrical tape so she won't keep taking them off. She does these things & also chews on her hair almost unconsiously & when we bring it to her attention, she hits herself & bites her own hand & says "bad". We're just trying to have patience (not easy @ my age) and just keep on trying to remind her & give her rewards for remembering.
Sounds like you found a great school for your son. I hope it continues to work for you.
Thanks again for your reply!
Eleanor
- At 8:41am on August 2, 2008,
MacLain D. Rigdon said…
- At 9:37am on July 26, 2008,
MacLain D. Rigdon said…
- Hey Deanna, Great to hear from you. I've been thinking that I need to log onto Asperger's world for a few days now and say hi to my friends. Things are moving along. Jack loves being in school, except that he gets bit by the other kids all the time. I'm proud that he hasn't bitten any of the other kids back. He's a good boy. Marjie and I are getting ready to start school at the community college here in town. We are each taking programs that will transfer into other schools. We've decided that we need to move again. Originally our plan was to live here and commute to Appalachian State University, which is a little over a half hour away, but straight up the mountain, and it is more costly than ever now, so we started to rethink our paradigm. Anyway, we got to looking at other schools in North Carolina, and it looks like we are going to try to go to UNC now. The thing is, the program at ASU wasn't perfect, but it was close. I've been telling everyone that I want to go into photography, which is true, but only halfway there, what I really want to do is photojournalism. Anyway, they have a great photojournalism program at UNC, so it is perfect. Plus, we would be able to move close to the school and take advantage of public transportation and all that. It would be perfect for me to be able to ride my bike to school. Plus, we feel like there will be good schools in the area for Jacky as well. There is another school in that neighborhood that has an even better program, but it is a private school, and expensive, so we'll see. It's Duke, and they have a program called Documentary Studies, which would be exactly what I want to do. I've never had the confidence to go into writing, like creative writing, or something like that, but this would be a way I could augment my insecurities. I could write, but also photograph, and tell stories through two mediums. I have two photo blogs I could show you, but I've already had my hand slapped for putting blog addresses on here, so I don't know how to get them to you. Are we allowed to share email addresses? maclainrigdon@gmail.com. Anyway, I'll send you the links and you can take a look at some poetry and whatnot also if you want. Oh yeah, crazy things happening. I have a crazy story to tell you. A year before all this came about, I sent my dad a drawing pad and some pencils for his birthday. He used to draw hot rods all the time, and he was pretty good too. They were kind of cartoony looking ridiculous cars and boats and planes with blowers and pipes and flames and all sorts of stuff. He would just sketch them while talking on the phone or something, and just throw them away afterward. Anyway, his sister told me he used to do a good bit of drawing so I thought I would try to get him back at it and maybe reach him by getting him into something that really makes him happy. You know, I was doing that thing that nobody else has done before, which is value his natural abilities. My point was, I wanted him to draw pictures for me so that I could show Jack, and then Jack would be inspired knowing that someone related to him had this ability, and maybe he could too if only he gave it a try...and so on....because I can't draw to save my life. Well, he ignored the whole thing, as usual, and I went out to sea, and missed my step-brother's wedding, and my wife got cancer and yada yada yada....until this year, and I told him about AS. It goes without saying that it certainly runs in the family, but the thing is, he is an extreme case if you ask me. His condition is so ingrained that his whole world is a construct of mechanisms to maintain his self esteem. He makes a slue of money, so it doesn't matter what he spends, and he also uses it as a leveraging device to dictate the "rules" by which the people around him act. Well, all that said, he reacted to my news of AS just like I thought he would, and he gave me this autonomic response, his language was sorrowful, but not without sarcasm. He said he was sorry about my new disease and all that, which really pissed me off, but then he invited us down to his place for the fourth saying that he is sixty something, and won't be around much longer, and blah blah blah...well, I wrote back and reminded him that this thing was hereditary, and he better take another look at the information I gave him, cause he is looking in the mirror. I also said that I am a poet, and don't forget it, I've been a poet for a long time, and it is related to this thing, because I write as a means of communicating, and I explained this to him noting the three poems he framed and put on his wall from when I was ten or eleven. He would have to look up at them, they are in view of his computer. Then I said that being a long time poet, I've been through death, and death is a friend of mine, so don't think I'm gonna come down and visit just cause you're gonna die soon, cause remember, death is a friend of mine, I ain't afraid of that. Then I ripped him for calling this a disease and told him it was a condition and I just carried on about how he of all people should understand my dilemma. Well whatyaknow, but he changed his tune. For the first time ever, he listened to me. He wrote back, they don't know we have a phone, and asked what they could do to help. All I said was that I needed him to draw me some hot rods. And you know what, he has been doing it. He's been drawing my Jack a collection of hot rods, and I've been posting them on a special blog. He's a little rusty, but getting better, and better yet, he's having fun doing them. He and his wife are getting involved with local autism groups, and they are being very nice. We may even visit with them soon. I think they know that we are dealing with the same problems they are dealing with. Life for them ain't easy, especially my step mom. She's got a heavy burden maintaining his world with him, cause his world ain't small, and I can tell they are getting tired. They have appearances to maintain and all that, and I think they see why I don't value any of the things that they put so much emphasis on, things like cars or money or big houses and whatnot. They aren't real, and they only serve to let other people know what your prowess is, but your prowess isn't anything, those things aren't anything, they aren't even real, they are just things, made out of elements found in the ground...in essence, they are free, just like Johnny Cash's song, I got it one piece at a time, you or me or anyone could have those things, if we gave up what we believe in, if we gave up what we love, and use our time making money instead of making memories, or making art, or making something, something, just not money, which isn't anything, a figment of our imaginations, and now just numbers on the screen and not even paper notes that are promises of something better that can't always deliver, but now just numbers, on a screen...sorry, I digress. Anyway, they also warmed up when I sent him a copy of Autism, The Musical . I think Stephen Stills' son really got to them, especially cause he looks like Jack, and acts like I used to at that age, exactly like I used to. That video did a lot of good. My mom on the other hand is still grasping for straws, but she may never come around. The attitude that I am just making excuses for not being what she wants me to be is hard to give up. I nailed her when I said that she was trying to live out her ex-hippie life while using me to live down her parents' conservative overtones by making me become something with a title, like a lawyer, or a Senator, or something like that. My grandfather was an FBI man, and later GA State Patrol, and then a Sheriff, so they lived that campaign lifestyle, and they were impressed with titles and stuff, but I'm not. It is just like the money thing to me, just a figment of all our imaginations. I want to be real, and even if I did those things, it would be for real, and not on their terms, which them having terms pretty much closes me out from doing those things, cause I could never do them for real now that they are out there, making terms, and conditions, and so on....but still, I'm not interested, I think I might be an artist, who knows? Maybe with a little confidence I could be a writer. Who knows? It is frightening, putting myself out there like that, but hey, Who Knows?
- At 10:13pm on July 15, 2008,
Peggy said… - Deanna: My daughter is 15 years old , she was just diganosed this year in feb . My husband is from South Africa and my parents live there still . They have been there for 30 years. My parents are missionaires. I lived there for 10 years. We have always wanted to go back but there are no jobs. They are hard to find. Eventhough he is a Professor of Management all the school says they are restructering so we decided to stay here. We want to retire in Colorado.
- At 3:26pm on July 13, 2008,
Peggy said…
- We need to send our daughter to the dentist to but I have noticed since she has been on meds her teeth are getting worse. she has a heart co ndition to so we have to have to put her on medication before she goes. She does not like to go to the dentist because of their bedside manner. We hav finally found a doctor for her GI probelms that has a good bedside manner and knows what Aspergers Syndrome is . Which helps a lot. she does great with Christy. We have yet to find a dentist with a good bedside manner
- At 11:55am on July 5, 2008,
VisualVox said… - Hi Deanna -
As promised, I've written up something about going to the dentist, the experience and how I cope with it as an Aspie, which you might find helpful. It's available as a free download at http://www.sitebasics.net/visualvox/armed_to_the_teeth.pdf, and I've also posted it to my blog at http://www.aspergersworld.com/profiles/blog/show?id=1454106%3ABlogPost%3A16704
I hope this helps shed some light on the subject.
Cheers
V2x
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